Rare Disease Diagnostic Examination (Palpation, Eye Chart, Range of Movement Testing) 🩺 Medical ASMR

Well, it's a condition/disorder as opposed to one disease (just not as snappy for a title)—we're going to be assessing you for some odd symptoms: a lot of joint pain that doesn't go away with usual interventions and isn't associated with injury. Our usual suspects don't quite fit the bill, so what else could it be? We'll take a look also at your skin, eyes, jaw, spine, and medical history to determine what's going on. NOTE! I do actually have Ehlers-Danlos, as does the rest of my family, so this video is a combo of what I've been told about it by medical professionals and research (which is in the “Attributions” section below the trigger list). Because it is a condition that has its fingers in a lot of pies and has a ton of presentations, not everything is applicable to every case of EDS. I'm focusing mostly on hEDS (hypermobile type) because that's what I'm most familiar with! Funnily enough, someone I met with EDS clocked me a decade before I got diagnosed when they saw that I have blue sclerae. I also chat about off-label naltrexone for comorbidities of EDS—I'm on 25mg for ME/CFS and chronic pain, which is not the normal dose of 5mg low dose naltrexone that is usually recommended and the 25mg worked wonders for me compared to 5 mg LDS. My PCP and I think it might be because of the EDS influencing drug metabolism, but hey, whatever works! What am I Seeing You For?: 00:00 – 02:16 Checking Your Joints (Palpation, Range of Movement): 02:16 – 07:46 Looking at Your Skin: 07:46 – 11:05 Inspecting Your Eyes: 11:05 – 13:00 Visual Acuity Test with Snellen Chart: 13:00 – 18:59 Testing Your Temporomandibular Joint: 18:59 – 20:52 Spinal Examination: 20:52 – 22:46 Checking Joint Hypermobility: 22:46 – 26:01 Extensive Medical History with Typing: 26:01 – 33:42 All About Ehlers-Danlos Syndrome: 33:42 – 36:39 Management/Do's & Don'ts of EDS: 36:39 – 46:32 Writing up Final Notes: 46:32 – 48:07 Wrapping up Examination: 48:07 – 48:33 Outro (Ear to Ear Whispering): 48:33 - 49:35 Triggers include: soft speaking, whispering, soft typing, asking questions, palpation, range of movement testing, narrating actions, inaudible whispering, fabric sounds, dictating notes, skin inspection, face touching, little bit of light triggers, eye chart reading, indication trigger, crinkly cling wrap, follow instructions, paper rifling sounds, and kind of a ramble about the condition at the end. Attributions: 'Ehlers-Danlos syndrome' by the Mayo Clinic https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptoms-causes/syc-20362125 'What is EDS?' from the Ehlers-Danlos Society https://www.ehlers-danlos.com/what-is-eds/ 'Ehlers Danlos Syndrome' on Nat'l Organization for Rare Diseases (NORD) https://rarediseases.org/rare-diseases/ehlers-danlos-syndrome/ 'Conditions linked to EDS' on Ehlers-Danlos Support UK https://www.ehlers-danlos.org/what-is-eds/information-on-eds/conditions-linked-to-eds/ 'Ehlers-Danlos Syndrome and Comorbid Conditions' on EDS.clinic https://www.eds.clinic/articles/ehlers-danlos-syndrome-comorbidities *ANECDOTAL* - 'What EDS symptoms did you think were normal, until you found out they weren't?' on r/ehlersdanlos https://www.reddit.com/r/ehlersdanlos/comments/x3xa3f/what_eds_symptoms_did_you_think_were_normal_until/ Hope y'all enjoy, have a whale of a day! :) xx Calliope ❥ If you want to donate to/learn about an important cause: 🟢Dahnoun Mutual Aid Fund: https://chuffed.org/project/115245-dahnoun-mutual-aid Mutual aid organized by Gazawis for Gazawis in Palestine for items like water, food, and baby supplies 🟢Autistic Self Advocacy Network: https://autisticadvocacy.org/ Non-profit run by autistic people for autistic people to share advocacy tools, educational resources, and fight for disability rights What They Do: https://autisticadvocacy.org/about-asan/what-we-do/ 🟢Lambda Legal: https://lambdalegal.org/ Lawyers for LGBTQ+ and HIV-Positive Individual Rights What They Do: https://lambdalegal.org/issues/ Charity Navigator Rating & Info: https://www.charitynavigator.org/ein/237395681 ❥ If you want to donate to the channel: Ko-Fi link (one-time): https://ko-fi.com/calliopewhispersasmr Patreon link (monthly perks like early access videos & exclusive content): https://patreon.com/calliopewhispers Throne Gifts (wishlist for props/equipment): https://throne.me/u/calliopewhispers ❥ Check me elsewhere on the Web: The Big List Of It All: https://linktr.ee/xxcalliope Spotify: https://open.spotify.com/artist/295qW7K1Ov0gLrb6nWXS3x Apple Music: https://music.apple.com/us/artist/calliope-whispers-asmr/1666809870 Amazon Music: https://music.amazon.com/artists/B0BSQQP9ZF/calliope-whispers-asmr ❥ Background image in Outro is “Close-up Photo of Green Leafed Plant” from user Aditya Aiyar on pexels.com, no attribution required. ❥ My equipment: Audio Recording – Rode NT1-A Microphones with Zoom H4N Recorder Filming – Lumix G85 Camera #asmr #asmrroleplay #relaxingasmr